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Who We Are
My daughter was born with TSCS in 2001. At the time, there was very little known about her
condition at the hospital where she was born. My husband and I had no idea what we were dealing with, were very scared
and sought help from doctors at Children's Memorial Hospital in Chicago. We were educated a bit on tethered cords
but had a lot to learn. Over the years we have tackled each challenge as it came our way, but really longed for
a central resource for support, education and some answers. During Emily's ten day hospital stay in February of
2006, our family became frustrated at the prospect that Emily will endure future surgeries because she was not able to be
fully untethered. I decided then that we and others like us need our voices to be heard to encourage public awareness,
educate and raise money to dedicate to research to improve the lives of those with TSCS. In June of 2006 I founded the
TSCSA. We are an organization dedicated to bettering the lives of those affected by tethered cords. Our ultimate
goals are to find what causes tethered cords, minimize the symptoms of those living with tethered cords and repair damage
caused by tethered cords.
Amy Boland
Executive Director
Tethered Spinal Cord Syndrome Association, Inc.
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